Sunday, February 28, 2010

ARTHROGRYPOSIS

Aaron has Arthrogryposis.  So what exactly is Arthrogryposis??  Good question!  We are just learning the answer ourselves.  From the Arthrogryposis Education page:

Arthrogryposis (Arthrogryposis Multiplex Congenita) is a non-progressive physical disability
characterized by the presence of multiple fixed joints throughout the body at birth. Limited movement of
the fetus in the womb results in the formation of extra connective tissue, which becomes fixed around the
joints. The tendons, which enable motion, either do not form or do not stretch out completely. This
disrupts normal muscle development and limits the range of motion around the affected joints.
Arthrogryposis typically affects joints of the hands, feet, shoulders, hips, knees, wrists and elbows and in
some cases various muscles throughout the body.

     We have three pictures of Aaron and a small description about his condition.  That is about it!    We know arthrogryposis doesn't get worse with age ... and can be helped.  We know that when he was at the orphanage he was walking.  We can see in the pictures that his hands and elbows are affected.  We believe that he has some issues with his feet.  The rest we will discover when we meet him.  Will he have surgery... we have no idea... will he need therapy... most likely.  Are we clueless.. absolutely!

This weekend it hit us again how little we know about Aaron and how big a leap of faith we are taking.  We are committed to bringing him home and dealing with the issues one day at a time. Right now we are just dealing with waiting for our federal fingerprint appointment.  The one day at a time started on January 9, 2009 when we e-mailed Reece's Rainbow about Aaron!  It is a daily walk, trusting that God has and will continue to guide us down this road. 

2 comments:

  1. Your little Aaron is so cute I can hardly stand it! What a treasure you have found. Best wishes!

    ReplyDelete
  2. Good luck for his future !!

    You can opt for special classes for him. God bless him :)

    ReplyDelete

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