tag:blogger.com,1999:blog-7297657180254499319.post7702090178213360201..comments2024-03-06T06:00:01.594-05:00Comments on Micah Six Eight: Our Hard RoadJuliahttp://www.blogger.com/profile/04814524050417570766noreply@blogger.comBlogger18125tag:blogger.com,1999:blog-7297657180254499319.post-69449013146436425752018-02-03T22:04:33.324-05:002018-02-03T22:04:33.324-05:00Thought you might like this: http://elizabethaquin...Thought you might like this: http://elizabethaquino.blogspot.com/Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-66547482246389705532018-02-03T21:35:43.515-05:002018-02-03T21:35:43.515-05:00praying tonight for peace to reign in little miss ...praying tonight for peace to reign in little miss marys heart so you can find a path out of the trenches.(or at least an oasis in the middle of them!) Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-46115750973037673872018-02-01T22:17:42.187-05:002018-02-01T22:17:42.187-05:00Julia, I have a friend who works in a medical mari...Julia, I have a friend who works in a medical marijuana dispensary and she has been sharing some incredible pictures of a child who was having multiple seizures an hour but is now seizure-free. You can see the before/after photos of the child here: https://www.facebook.com/sweetsupernova/posts/1594065237351480?pnref=story<br />Here is the page: https://www.facebook.com/sweetsupernova/?hc_ref=ARSGZcNVCI1VZ58upcsO7g_NmvdSiutBWlOtohv6M70kYWl5YkWACjJjLsOnfwCre-Q&fref=nf<br />She has had one regression, they think because of an infection, but is now seizure-free again.Pennyhttps://www.blogger.com/profile/17019888940439717076noreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-83903389245933027402018-01-29T21:35:11.236-05:002018-01-29T21:35:11.236-05:00I am praying for you, Julia. I think of you and yo...I am praying for you, Julia. I think of you and your family often. God is with you 💗Heidihttps://www.blogger.com/profile/04977266243459038803noreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-81628907098584959502018-01-25T00:25:20.492-05:002018-01-25T00:25:20.492-05:00There are no suggestions, directions, or recommend...There are no suggestions, directions, or recommendations I will give as I'm certain you are doing the very best for all of your beloved children! Prayers for you all as you process, and help each other process the day to day (moment to moment) changes. 💓Colleennoreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-35878888334571529852018-01-22T20:07:00.197-05:002018-01-22T20:07:00.197-05:00Prayers Momma. Sometimes there are no words but pr...Prayers Momma. Sometimes there are no words but prayers for you and your family.Cap Creationshttps://www.blogger.com/profile/09446130997017322911noreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-5730549337409049532018-01-21T21:51:23.002-05:002018-01-21T21:51:23.002-05:00I have a friend who led the fight, and won, here i...I have a friend who led the fight, and won, here in PA to legalize medical CBD oil. Her daughter has intractible epilepsy and was truly just the shell of a child after medications and diets. After seeing her results from using the oil, I am a believer. The transformation has been incredible, and nothing short of a miracle. It sounds like Mary has a different diagnosis, since you mentioned it shouldn't affect her cognitively, but I just wanted to let you know that I have seen with my own eyes the amazing effects of CBD oil and offer you a small bit of encouragement. I know you don't know me, and I don't know you other than reading your blog since shortly after you brought Aaron home. My heartfelt prayers to your whole family...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-23076602380719941422018-01-21T18:33:18.677-05:002018-01-21T18:33:18.677-05:00Julia, I am crying with you right now. So much lo...Julia, I am crying with you right now. So much love and prayer for you...Susannahttp://www.theblessingofverity.comnoreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-22256279905646053122018-01-21T15:47:43.212-05:002018-01-21T15:47:43.212-05:00Our ministry is involved in supporting orphans in ...Our ministry is involved in supporting orphans in one of the Ukrainian orphanages in Shpola on a constant basis. However, we also need support. Find out how you can help and support the orphans in Ukraine on the link <a href="https://hopenowusa.org" rel="nofollow">https://hopenowusa.org</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-61529828111035874302018-01-20T20:55:57.195-05:002018-01-20T20:55:57.195-05:00Julia,
I have been checking your blog for an updat...Julia,<br />I have been checking your blog for an update. I'm sorry you all are facing this. I know the Lord was right beside you when the team of doctors brought the news. He will never leave you, nor forsake you, or Mary, or any of the beloved Nalles! May He give you strength to persevere and cling to Him, and see the joy. I will keep praying!!!!! Much love- KellyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-17512607932402112372018-01-20T17:38:08.995-05:002018-01-20T17:38:08.995-05:00Gently, I know all are under stress but teach Mary...Gently, I know all are under stress but teach Mary to direct that stress on something inanimate. Pinching you should not be acceptable. You are in my prayers. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-36893630645658086642018-01-20T16:43:49.556-05:002018-01-20T16:43:49.556-05:00Thinking of you Julia.
Sue H.Thinking of you Julia.<br /><br />Sue H.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-85856150246684107512018-01-19T18:57:20.264-05:002018-01-19T18:57:20.264-05:00Oh, Julia. I'm so sorry. You are doing such go...Oh, Julia. I'm so sorry. You are doing such good work. Sue BerresAnonymoushttps://www.blogger.com/profile/14816146616725451610noreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-43818575339900896532018-01-19T17:01:45.785-05:002018-01-19T17:01:45.785-05:00...and with the epilepsy, now that you have at lea......and with the epilepsy, now that you have at least a name for this rare form: <br /><br />Reach out to the support networks/facebook groups for epilepsy out there on the web and social media and see if you can find others around the world who suffer from the same form. Maybe some of these can share what has worked for them...<br />Prayers!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-35515564155789643772018-01-19T16:58:29.485-05:002018-01-19T16:58:29.485-05:00Hello again,
I just typed a comment regarding a g...Hello again,<br /><br />I just typed a comment regarding a great trauma support group for dealing with all the issues *besides* epilepsy.<br />https://www.facebook.com/groups/parentingwithconnection/<br /><br />I hope this helps!<br /><br />Big hug!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-68968025811742539032018-01-19T15:08:46.402-05:002018-01-19T15:08:46.402-05:00Oh, Julia, this is heart-breaking, but at least no...Oh, Julia, this is heart-breaking, but at least now it's clearer what's going on. Great news about cognition, too. <br /><br />Would surgery be possible, to take out the damaged areas? At Mary's age, recovery would likely be swift and complete...though I'd hate to put her through the experience, the outcome might make it the right choice - if it's an option, at all, that is.<br /><br />Hugs and prayers all around for everyone. I'm glad Mary is enjoying the outdoors - that's a blessing for everyone. <br /><br />Susan in KentuckyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-4059008712597748682018-01-19T14:48:22.311-05:002018-01-19T14:48:22.311-05:00Oh I wished she loved soups. She HATES them! Like ...Oh I wished she loved soups. She HATES them! Like Aaron before her ... she wants nothing to do with soup or most breads because that was her staple for too many years. It took Aaron 5 years before he would eat soup. Now he loves them. BiblioPlanhttps://www.blogger.com/profile/03280711675527287905noreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-76767811192662665612018-01-19T14:41:03.571-05:002018-01-19T14:41:03.571-05:00Hey, sweet tired mama friend. You're doing a r...Hey, sweet tired mama friend. You're doing a really good job. You've learned faster than a med student and are balancing all the things and learning all the things. You're amazing. <br />As you look into the Keto diet... I'm just brainstorming here... how does she do with soups? I have a lot of new keto-tubie mom friends who make blends for feeding their kids through a feeding tube. Some of them might actually taste yummy as a soup. If she doesn't like soup, then that's no help, though!The Davis Familyhttps://www.blogger.com/profile/04372896860876492143noreply@blogger.com