tag:blogger.com,1999:blog-7297657180254499319.post4750554588653963068..comments2024-03-06T06:00:01.594-05:00Comments on Micah Six Eight: Braces and MoreJuliahttp://www.blogger.com/profile/04814524050417570766noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-7297657180254499319.post-67182417033981141282011-03-31T10:05:43.766-04:002011-03-31T10:05:43.766-04:00Hi-I agree with all the comments on the braces. F...Hi-I agree with all the comments on the braces. From the pictures it looks like he has AFOs like our daughter had. We went through the same thing when she first got them and we were brace novices. They should not hurt and they definitely shouldn't be causing red spots that last more than 30 minutes or blisters. I would go back to Philly or to the shop that fit the braces and have them adjusted. We sometimes had to go back to AI DuPont 3 or 4 times to get one foot to fit correctly each time she got a new brace. You might also find that as his feet and legs change a brace that was fitting well may have to be readjusted.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-62217728376648733592011-03-27T22:19:24.195-04:002011-03-27T22:19:24.195-04:00I do hope Aaron's brace can be adjusted - it s...I do hope Aaron's brace can be adjusted - it surely sounds as if the fit isn't right, as it causes him such pain and obvious injury to his skin. Might lambswool padding make a difference?? There are otc ointments and liniments which can both sooth and strengthen the skin. They're designed to combat bedsores, but might work well for Aaron, too - your pharmacist might be able to suggest some. Also, increasing protein in the diet helps strengthen skin and speed healing. However, it does sound like removing or adjusting the source of the excessive pressure is very much called-for as well. I hope you all can find some good answers soon - this is so hard on everyone, especially Aaron himself.<br /><br />That cool bulldozer sounds like just the ticket for happy distraction and imaginative play - how thoughtful of Tracey S. to send it to Aaron!<br /><br />Take good care - sending prayers and good wishes for rapid improvement all-around!<br /><br />Susan in Ky<br />Cousin to Two from U.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-9500109368686535782011-03-27T14:35:47.042-04:002011-03-27T14:35:47.042-04:00I'm glad Aaron liked the bulldozer! I sent it ...I'm glad Aaron liked the bulldozer! I sent it BTW. I guess I forgot to message you and let you know! I hope he can push the buttons!Tracey S.https://www.blogger.com/profile/00830027288769196047noreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-45528914975182328022011-03-27T14:13:28.997-04:002011-03-27T14:13:28.997-04:00I am so sorry for each of you in this process. My ...I am so sorry for each of you in this process. My older sister had many surgeries and wore many different types of braces over the years. I can remember waking to her cries and moans. I remember my Dad kneeling next to her bed while he rubbed linament into her aching leg and back. I remember the helpless feeling and the fear of pain in the night. Praying for all of you!<br />Oh- I would call the doctor about the sores. My sister ended up in the hospital on IV antibiotics several times because of infected pressure sores.Alicehttps://www.blogger.com/profile/03234405670230407984noreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-87184199518515413942011-03-26T23:07:40.502-04:002011-03-26T23:07:40.502-04:00We have two kids with braces. I don't think a...We have two kids with braces. I don't think any Dr. would want braces to be worn that are creating sores. Sores are very serious as far as infection. Have you tried mole skin over the sores?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-39264569177682772542011-03-26T17:39:43.128-04:002011-03-26T17:39:43.128-04:00my vote is that is the orthotic is causing skin sh...my vote is that is the orthotic is causing skin shear to the point of brakedown or wound that he should definitely be seen again by the original doc.... luv PT lizliz kulphttps://www.blogger.com/profile/01760547162429167972noreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-63945225810871749962011-03-26T16:27:40.956-04:002011-03-26T16:27:40.956-04:00Can you call over to the Dr that placed the braces...Can you call over to the Dr that placed the braces? I would not think they would want tissue damage, maybe they do need to be adjusted?Catherinehttps://www.blogger.com/profile/11127820062506675675noreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-90416324615564350812011-03-26T14:44:06.824-04:002011-03-26T14:44:06.824-04:00send an email to VB with photos of his foot out of...send an email to VB with photos of his foot out of the brace. the one that is giving him trouble. <br />this is Tam. not anonymousAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-5496441820596394812011-03-26T13:03:50.530-04:002011-03-26T13:03:50.530-04:00I am so happy that news of Kirill's plight is ...I am so happy that news of Kirill's plight is spreading. I posted on FB, contacted Fox News, & am in the process of contacting my local media outlets.....One of which has an anchorwoman whose little girl happens to have DS. Praying for all of the little children you have mentioned, yours included!Looking Uphttps://www.blogger.com/profile/00622397350942965771noreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-39666598937742501472011-03-26T12:29:03.395-04:002011-03-26T12:29:03.395-04:00I don't know what type of braces Aaron has on,...I don't know what type of braces Aaron has on, but our daughter wears AFOs on both feet for CP and the doctor told us that if red marks last more than 30 minutes after she takes them off, then they need to be adjusted. We've never had sores. Poor guy :(Mom to Minehttps://www.blogger.com/profile/17337533904544824543noreply@blogger.comtag:blogger.com,1999:blog-7297657180254499319.post-7169330229058275932011-03-26T08:44:52.085-04:002011-03-26T08:44:52.085-04:00Julia, I would definitely take him back to get the...Julia, I would definitely take him back to get the brace adjusted. They can relieve the pressure areas. If he is getting a sore spot, that can complicate things....<br />We have done both braces and prosthetics. In both cases, our dr's do not want red marks to show up that last more than a few minutes after removal. It sounds like a trip to Philly is warranted. They can heat relieve the areas in question.<br />Poor sweetie guy. POOR Mom! :(Christie Mhttps://www.blogger.com/profile/09738612207150868577noreply@blogger.com