Thursday, April 28, 2011

Look At Me!







YEAH MAMA - LOOK AT ME!!!

I first wrote about Aaron's biking woes...HERE.  We have refused to admit defeat and are determined to get our little guy 'on the road'.  So we put training wheels on his no-pedal bike since he couldn't hold it up with his hands AND walk his feet.  The training wheels  have allowed him to get the bike moving at a snail's pace, but inclines are a big challenge.  Aaron is quite proud of his efforts but the bike saga continues.... Plan C is coming soon.  We have a wonderful new friend from Richmond who is helping us figure all of this out...

We are SO GRATEFUL for all the people who have e-mailed and commented about Aaron and his bike.  It is so precious to us how many people care about our little fugitive and want to see him succeed. 

Tomorrow Aaron and I are off for another round at Shriner's in Philly.  We are seeing both of his Dr's tomorrow.  He will get his braces checked and then we will begin to address the challenge of Aaron's arms and hands.  We have no idea what the process will involve in regards to his upper extremities.  I guess we will learn as we go!  For those who wondered about the pictures of Aaron with the hand braces on, he  wears them while he sleeps but to prevent skin-breakdown, we had to break him into wearing them, so at first he wore them during the day, increasing the hours as we went.  Most likely he will eventually be wearing them all the time, just as he does the leg braces.

Despite so many strikes against him - Aaron has a love for life and a gratefulness that is downright humbling.  He is most definitely my diamond in the rough.


15 comments:

  1. What about a recumbent bike? Due to seizures and strokes, Angela cannot balance a two wheeler. A recumbent would at least get him moving while you work on the physical issues that make it hard to put it all together. http://gardenofeagan.blogspot.com/2008/05/got-wheels-by-angela.html

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  2. Aaron is beautiful! That smile and big boy face, but the dimples! He's just beautiful! I'm so glad some of the bike issues were figured out, he looks pretty pleased!

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  3. Way to go Aaron!!! I love the look of pure joy on your face and I must say, you look especially handsome in that last picture... :)

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  4. I love your sweet little Aaron. When I think of him in that awful place and then look at him now, playing with his brothers who love him so, I cry. God couldn't have chosen a better family. Thank you for keeping us updated on everything. I come here first thing each day. God Bless you and yours.

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  5. Aaron is a RockStar! Ain't nobody or nothing gonna keep that boy down. He was made for greatness by the King of Kings, the Lord of Lords. Shine on, Aaron, shine on!!

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  6. Love him Julia! My little girl, Chloe, got a push bike for her 4th birthday and she hasn't figured it out yet either (in fact she's terrified of it) - and she doesn't have any of the challenges that Aaron has! He is a determined little boy, can't wait to see a video of him CRUISING on that thing!

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  7. Looking forward to meeting you tomorrow. You just have given me an idea for Bryson with a bike. I can't wait to try this as with his hips out of the sockets there is no way for him to be able to do a rotation around with pedals, but he has a hard time balancing on a no pedal. The training wheels should do the trick!!

    Thanks!

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  8. Your kid is awesome! You rock Aaron!

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  9. Those dimples get me EVERY time!!! What a determined spirit that boy has! Refreshing!!!

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  10. Go Aaron, go!

    Your little man truly is a champ! And the progress he continues to make... you must be so proud of him!

    Thank you also for your post about Alicia, I read about her when she was child of the week/month, and her story just broke my heart. How I would love to see her get her very own mama and papa!

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  11. I'm so impressed to see how far he has come. And his feet looks to be working very well no. Can't wait to see what they can do for his arms and hands. So thankful that he gets the opportunity to get the treatment that his little body needs, and the love his heart needs.

    Monica
    www.xmaswarrior.blogspot.com

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  12. when my little one, with Down syndrome, was small, daddy put wheelbarrow tires on in place of the training wheels. MUCH more stable, made all the difference in the world. That boys dimples are to DIE for lol. Michelle

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  13. That little guy is too dang cute for words! so happy to see him making his way along! Oh, the accomplishments he's made in a year! Fantastic!

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  14. Such strength...what a courageous heart Aaron has. You should be so proud!

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  15. GO Aaron GO.. Go Aaron GO.. you're doing great :) keep up the good work and mommy and daddy and your brothers as well :)..

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Loving words from kind people make our hearts glad!

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