It's 5:40 am and I am sitting in the Richmond Airport heading for the Great Homeschool Convention in Fort Worth, TX.
Convention season has arrived.
I'm not ready.
I left little girl sleeping in my bed this morning.
Every morning for the last week she has slipped into non-stop seizures in the early mornings.
This morning was no different. Rob was there to rescue her.
I was driving to Richmond.
Trying not to think.
This last week we celebrated her 8th birthday.
She got to be princess for a day.
It was magical and precious.
But don't be fooled.
The princess had to have an escort (her big brother) hold her arm during picture time.
This is her current reality.
A new helmet that I personally hate.
It covers her entire face.
She needs it.
Last night she slammed to the ground face first. The new face guard did what it was designed to do. No bloody nose, bit lip, bruised chin.
I hate it but it's necessary.
She is no better.
And our hearts feel beaten and bruised as we watch her crumble over and over again every day.
But for last weekend we enjoyed our little princess.
And we celebrated in style!!
And a good time was had by all...
Happy 8th Birthday little princess!
You light up our lives!
Oops.... How in the world did that crazy hair day/crazy hat day picture land in this post???
Man, I am going to miss my three treasures this weekend!
Loving your family and praying for you and especially your PRINCESS!!! She is Gods little Princess!! Thank you for serving a great and loving GOD!!
ReplyDeletePut gold glitter all over that helmet! Make it a princess helmet!
ReplyDeleteHappy belated birthday to Princess Mary! What a wonderful birthday party. Hope everyone's birthday wishes come true. That new helmet makes her look like an astronaut - well, since Mary's certainly already a star, why not? Actually, maybe adding colored stars to her new helmet might be an apt decorative touch...
ReplyDeleteGreat hats and hair. John looks ready to take the stage at the Grand Old Opry, with Aaron singing back-up.
Enjoy your time in Texas - tell everyone hi for me when you get home.
Hugs all 'round,
Susan in Kentucky
Happy Birthday from the Maryland cousins, Mary!!!
ReplyDeletePraying, praying, praying for you and your little girl. Trusting in El Roi, our God who sees every fiber and every neuron in Mar's body.