Wednesday, June 13, 2018

Treading in the Ocean

We took little girl swimming a few weeks ago. She was crazy in the water. No fear. I sat with a friend and watched my three littles swim with their Papa. We sat and watched little crazy girl in the water. Rob had her in a floaty to keep her safe, but each time she had a seizure, her face would submerge in the water. It didn't phase her. She would recover and go right back to pure joy mode.

Then she decided she didn't want to be in the floaty. Papa had his back turned and out she slipped. The only bad part to her plan is that she has no clue how to swim. So little girl sunk to the bottom of the pool. Arms reaching up. Mama screaming on the side for Papa to grab her. Grab her.

You would have thought she would have wanted to get out of the water after that. I mean she swallowed a bucketful of water in her state of drowning. It didn't phase her. She was back in the floaty as fast as she could get back inside of it and happily swimming around the pool.

The water's been deep for us around here. We aren't quite drowning but are treading water in the deep end of the ocean.
Navigating a Keto diet and feeding the rest of the family is a whole new world. We are finding our way but it has been a definite challenge. An on-line friend kindly made us some easy to wear clothing that lets people know not to feed our little bear.

We write homeschool curriculum. We both work full time for our business. Three littles, three special needs, Annie shows, soccer for Aaron, surgery for John, teaching and grading papers for Julia all have taken their toll in the last months.
Our newest book just came out. We should be dancing and shouting for joy. It's hard to dance when you are treading water in the ocean. We have barely even advertised our newest book.

Three conventions in a row have me so bone weary I can't think straight right now.

This past weekend I took the little boys to the Virginia convention with me so I could have Mama time with them while I worked. Little girl stayed home with Papa. I get a telephone call. Little girl fell. She had a seizure on some playground equipment at the park and fell through an opening next to the slide. The babysitter cushioned part of the fall with her own body, but Mary landed on her shoulder. I dropped everything, threw the little boys in the car and raced home.

Friday night in the hospital is not a good place to land. That Friday night happened to be one of the worst places to land. Mary's spot in the emergency room was a bed in the hall right smack in the middle of everything. Beds were filled all up and down the halls. I climbed in bed with her and poor Rob stood next to us trying to stay out of the way. After a few hours someone was kind enough to bring him a chair. While she watched Frozen on my phone, we watched the chaos of the emergency room around us. Security guards and police coming and going. Stretchers going past us every minute or so. Nurses. Doctors. Residents. Cleaning staff. I started diagnosing people going by for fun. One poor man went hobbling by holding his gut. Definitely appendicitis. Score one for me when we heard the doctor telling him he needed to get them out.

Five hours later we left. Two small fractures and little girl's arm and shoulder wrapped and wrapped again to keep it safe and to give it a chance to heal.
How in the world do we keep little crazy girl still and quiet until it heals? How in the world do we keep her from having a seizure and hitting her shoulder every time?

Yesterday morning... back to the hospital. Little girl started seizing and wouldn't stop. I can't even describe the fear we experienced. Waiting for the ambulance while she seized again and again and again was agony beyond words.
Five hours later back home with heavy hearts as we realized anew that our little girl's epilepsy has no easy fix.
Treading in the deep hasn't been easy.
We really would like to get out of the ocean for a while. Conventions are almost over. One more trip to Texas next week and traveling will be done. Did I say our book is done? Rob wrote the lion's share of it so I can say with utter pride and pleasure that it is an amazing book. I had the privilege of teaching a classroom of children this year who read the rough draft of the book and they loved it. They came to class each week filled to overflowing with stories out of each chapter to tell me. What a chuckle. Mrs. Nalle... did you know....
Our older sons are amazing. They jump in during crises and carry the load. They travel to conventions and do all of our packing and shipping and help with the three littles. They go shopping and pick up prescriptions and mow and cook and whatever else we need.
My dad next door. He's priceless. He is here every single day helping us with our littles. I truly don't know what we would have done this year without him.
We are beyond grateful for the helping hands that the Lord has provided for us this year.
Yes, it's been a rough 2018.
But we are hopeful that over the crest of the next few waves... we will find solid ground and get to the shore.
Treading in the ocean can't last forever!
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  1. Once again, I'm blubbing as I read your blog! I'm so thankful for you, your family, for the life your 3 littles have instead of what could have been. Some days must be dark, some waves pounding and unrelenting; but what the Lord has saved them's unfathomable to me. Keep your doggie paddle going, and always remember, HE is the lifter of your head, even in the seas. Dearest love, Kelly M

  2. Praying for you and your family every day . . .


  3. Praying for your family!


  4. Praying, dearest Julie and Rob! May the shoreline come soooon! Strength and grace be yours in lavish measure!

  5. You have been on my heart this week so i finally made it here to see how you are. Praying for you all! Good song if you need one is Peace by Josh Baldwin.

  6. Could she get any cuter? I'll pray for an end or cure for her seizures to stop or slow down. It's amazing how much she loves the water. Will she wear a cute life jacket in the water? Thank you for sharing and updating!


Loving words from kind people make our hearts glad!