Friday, December 7, 2018

Friday Woes

I am currently sitting on the bottom of Mary’s stretcher listening to her moan and cry in a miserable drugged sleep. I am typing on my phone with sketchy internet and no chance of a room. The hospital is full. I am grateful for an ER room and not a stretcher in the hallway. It’s been a rough day. 

Little girl has cycled into seizure hell this week culminating into needing to come to the ER. While here she went into status giving a whole lot of doctors and residents and nurses and everyone else in the area a chance to witness her unique version of non-stop seizures. 

They rescued her with some hard core stuff because one dose wouldn’t bring her out and they gave her even more to hopefully stop the cycle. We now know that this new rescue drug makes her drugged and miserable.

A pitiful crying drunk. 

We would appreciate prayers for our little girl. 

Prayers for us too would also be gratefully accepted.


  1. praying deeply and with love. So very sorry for her suffering and yours. May God wrap His arms around all of you and give her much needed relief...answers too. Update when you are able.

  2. Wish the could do some mapping and surgery on the area to stop them.

  3. I have been praying for your family every day for quite a while, and will continue to do so.


  4. You have my prayers. I'm praying for the caregivers at the hospital too,that they'll be able to help. Love and hugs to you. Barbara

  5. Hello Julia,
    My son also has status epilepticcus.
    So many prayers for you all and especially Mary.

  6. Praying for you tonight. Julia, I'm in awe of you. I don't know how you do all that you do. I pray that our God fills you with supernatural strength and peace.

  7. You don't know me from a hole in the ground, but I have been following your blog for quite some time now. This post made my heart ache so much. I cannot fathom how hard your journey has been. Praying for your little girl and your whole family as you walk through this.

  8. Wishing you and that gorgeous girl
    Many prayers!!

  9. Praying for you all! I hate that you are all going through this, but thankful Mary has someone at the foot of her stretcher & by her side always. Praying for some relief & strength for you all in this time.

  10. So sorry, praying for your precious daughter!


  11. Praying....

    Hope tomorrow will be a much better day.

    Hugs all around from
    Susan in Kentucky


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