Friday, January 4, 2019

Mary Update

Wednesday was a LONG day for little girl. But she was unbelievably patient and well-behaved despite the fact that we kept refusing to give her any food each time she asked. Her surgery didn't start until 4:00 in the afternoon. That was a long time to go with nothing to eat or drink since the night before except water. Poor babe!

She wasn't too excited about all the people poking and prodding her and refused to answer any questions or engage with anyone except us. 

We knew when the happy juice they gave her had taken effect when she drunkenly gave the anesthesiologist this smile!!

She went back to the OR clueless and in good spirits.

She came out three and a half hours later quiet but doing quite fine. 

The surgery went well. They put the VNS device in and in three weeks they will turn it on. 

It will be set at the lowest setting and each week they will increase it. 

So it will be awhile before we see if her seizures decrease with the implant. It gives us extra weeks to pray hard for the best results!

We came home yesterday afternoon after a rather LONG and SLEEPLESS night at the hospital. Our roommate, we learned, loves SpongeBob and is afraid of the dark so we spent the night with the room lit up like Christmas and the TV on at the loudest volume possible. Around 1:00 am I was able to at least get the volume down but not the lights. Little girl had to bury her head under me to hide her eyes from the lights. 

You would have thought that our roommate would have slept in but at 6:00 am the TV volume was turned back up and we got to listen to more episodes of SpongeBob again. 

Coming home is the best after a night like that! 

Thank you to all who are praying for our little girl! Keep them coming! Seizure free is our heart's desire!


  1. What a day - and night! Glad you're back home and can rest and recover - you as well as Miss Princess Mary Sasha. I will continue to pray for the best possible results from the surgery, and hope the next three weeks fly by rapidly and happily for all of you.

    Hugs from Kentucky-


  2. I am so very thankful that God has crossed our paths. Please tell Mary that Pastor Gary Loves he and is praying for her and can’t wait to see you all soon!

  3. Praying for this to be a miracle!


Loving words from kind people make our hearts glad!