Sunday, February 16, 2020

We Hide It Well

It's Sunday Morning.

Mary just finished her breakfast.

We won the lottery this morning.


Sundays are hard.

A weekly battle that I have come to dread.

Our day of rest is usually one of anxiety and stress as we navigate around what epilepsy does to our little one. Going from sleep to wake for Mary is her absolute worst part of the day. We deal with morning time issues every single morning but somehow on Sunday it always seems worse.

By the time we get to church we feel like we have run a marathon and should win some kind of consolation prize for just showing up.

Some mornings it is all I can do to hold it in. The stress and frustration just below the surface.

We hide it well.

Most people at church are oblivious to how much effort it takes to get out the door.

But this morning she ate. 

She didn't start eating and then go into freeze mode. Not able to swallow or spit. 

She didn't chipmunk the food in her mouth. Seizures piling on with us helpless to do anything but wait it out.

She didn't refuse outright to eat.

She didn't go into status. We didn't have to rescue her.

She ate. She swallowed. She talked. She sang with Papa while he practiced the guitar. She took all her pills.

The lottery. It was the grand prize lottery this morning.

And we are breathing easy. Feeling like we could win if all marathons looked like this. Less stressful. Wishing every morning was like this. Especially Sundays.

Church. Worship. 

No marathon.

Thank you Lord. Thank you!


  1. I love hearing about God’s victories in your lives! I pray for Mary (and you all) often. Thank you for weaving your belief in God into your struggles and sharing it with us!

  2. Yes, Lord, Thank you. Please send Mary and her family your peace and healing. We too are sending prayers.

  3. Grace! So grateful for any respite for all of you!

  4. My heart goes out to you guys - I hope that somehow the easy days become more and more frequent. You are doing an amazing job and your kids are all beautiful.

  5. So happy for you! I too know what it's like to live a "hidden" life with my special needs kiddos. People on the outside never give us a second thought. They have no idea (and truthfully no real interest) in how challenging our lives can be. I try not to be hurt by this, but sometimes it does bother me. I love to hear of the little triumphs you have every now and then. They are truly treasured moments. I celebrate with you! Susan

  6. Thanks for Sharing! So happy for you. I will pray that this Happens regularly now. 🙂

  7. Feb 17 This morning before I got up I was praying for Mary. You don't know me but I've followed your family forever. I'm so thankful for this good news. I'll keep praying. That smile is a gift!


Loving words from kind people make our hearts glad!