Tuesday, December 1, 2020

A Relentless Beast

Last night Mary had two status episodes. Twice we were ripped out of our sleep to alarms and a seizing child. They are heart-stopping, brain shocking events. 

We are torn between trying to get to her, pulling rescue meds and shutting the stupid alarms off. 

The watch she wears is connected to an iPad which triggers the alert. The alert is sent to our house phone and our cell phones. 

Everything goes off. Everything. 

And nothing will stop until you respond to each one. 

And if you don't respond fast enough - they go off again. 

And if you forget to remove the watch from her seizing arm - the alarm will trigger again. 

That happened last night. 

Many times. 

By the time we have her stabilized, rescue meds in her - we are both in full-on post alarm traumatic syndrome. All we can do is just stare at each other.

This morning I am a mental wreck. Exhausted. 

She's been doing so much better during the day. If not for nights like last night we would be throwing parties on how well her day seizures are going.

Nights like last night are vivid reminders that our little girl suffers from a beast that is relentless. It body slams her to the ground just when we think we have it tamed.

Why am I sharing this?

Because my MACC pick this year is a little boy who has epilepsy.

He takes meds all the time to keep his beast tamed.

I have no idea if those meds work or not.

He has speech issues.

He has orthopedic issues.

He has other issues.

He has NO ONE fighting for him. NO ONE getting up and rescuing him in the night. NO ONE caring for him. 

He is one little boy among so many out there but HE MATTERS.

He hasn't reached his $1,000 goal. We are still $405.00 short.

But more importantly - he doesn't have a family.

YES. Epilepsy can be scary. It can traumatize. It can cause sleepless nights and post traumatic stress syndrome.

But... Mary would not have survived.

Not over there. Not the way her epilepsy was progressing.

I am sharing Preslley with you because that little boy is battling the relentless beast alone.


I don't know his prognosis.

I just know that right now he needs us to share him far and wide so that somewhere out there a Mama and Papa will see him and will stop long enough to hear the Holy Spirit whisper - He's yours.



Please share.

Please give so that money is not a factor in the decision.

Please please please pray for Preslley.

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